If you read my first blog you know that Trek has played a huge role in my wife and I’s life. His birth was the game changer and has forever altered my perspective on life and how I spend my time. One week ago my wife and I took Trek to a routine doctors visit because we noticed that Trek seemed a little small. What transpired after that seems like a lifetime ago now, but really it has only been a week. Four flights, three states, and countless hospital visits later we now know that my son, Trek Atlas Ingram, has a disease called Niemann Pick Type A. It is an extremely rare genetic disease that attacks the metabolic system, specifically it is a Lysosomal disorder. It is degenerative and there is no treatment.
I will write more in the coming weeks as we know more. No words can express the sadness that Chelsea and I have experienced over the last week. We love our son more than anything and the news has been difficult to bear. We appreciate your thoughts and words during this time. Know that Trek has lived a phenomenal life thus far and will have an exceptional life whether it be for two years or a thousand. He is the sweetest baby boy and my wife and I cherish every moment with him. If you have questions you may email, text, or call. I will answer you when I can. I know that Trek has made an impact on many of you in his life and is loved by all.
For now, I just wanted to say thank you for your thoughts and prayers thus far and keep in touch.